VivÃncias de familiares de crianÃas e adolescentes com fibrose cÃstica

AUTOR(ES)
DATA DE PUBLICAÇÃO

2007

RESUMO

The objective of this work was to reveal the signification and sentiments of the families who care for children and adolescents with cystic fibrosis by describing their daily routine, adherence to and participation in the treatment and the observation of the disease, pointing out their difficulties, anxieties and fears. A bibliographical study about the theme in question, founded on referential theory which is to care for children and adolescents with chronic diseases in the family context, in the perspective of a qualitative approach. The study was carried out with a qualitative approach at the Professor Fernando Figueira Maternal-Child Institute (IMIP) in Pernambuco. Data collection was obtained through questionaires, free word assosciation test and taped interviews with 13 family members (11 mothers, 1 father and 1 grandmother) from January to May of 2006. Their words were submitted to content analysis and theme modality. As a result of the analysis, four themes emerged: the diagnosis and the Impact of the disease; Alteration of the familyâs daily routine, Perseverance and Hope in science and in the outcome of the disease and Cure through belief and faith. This study could contribute to the inclusion and valorization of the family in the care of children and adolescence with cystic fibrosis thus providing better patient attendance

ASSUNTO(S)

fibrose cÃstica pediatria famÃlia crianÃa e adolescente

ACESSO AO ARTIGO

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